Annie had her EGD on Monday. We went in around 1:45 and we were home by about 6pm - not too bad! The procedure itself only lasted about 20 minutes and Annie was "out" for only about an hour or so. Our GI doc took 4 or 5 samples for biopsy and saw mucosal nodules on her duodenum (bumps on her upper intestines) which he thinks may be an allergy of some kind. Problem is Annie is on a gluten free, soy free and very limited dairy diet, in addition her tube feeding formula is specially formulated for children with intolerance's. At any rate we'll see what the biopsy's show (results Wed. or Thurs.). We pray that there is something there that we can correct to give Annie a bit of relief.
Scott and Bridget met in 1993 and were married in 2001. In September of 2003 we welcomed our first miracle, James. 16 months later we brought home our second miracle, Annie. And in October of 2006 our family was complete with miracle #3, Gracie. Rett syndrome entered our lives when Annie was diagnosed on May 19, 2006. This is the life of the MacDonald family as we juggle 3 small children and battle Rett Syndrome until Gods perfect time when we are cured.
Tuesday, February 23, 2010
Lokomat Video and Update
As promised here is more video from our Champion on the Lokomat! I just LOVE this thing! We are already seeing so much progress in Annie's walking. She is picking up her feet and bending her knees nicely when she walks at home. She also seems to be getting stronger and has more endurance. In fact, this past weekend before the snow hit, when it was really nice out, Annie and I took a little walk. We did this all summer, we would start in the garage, walk down the driveway to the sidewalk and we would see how far we could get until we had to turn around and head back. Over the summer and into the fall we could go about 2 houses down. Just this past weekend Annie made it 4 houses down and all the way back! I can't believe it with all the time she's been sick and just being cooped up for the winter. This girl amazes me!