Scott and Bridget met in 1993 and were married in 2001. In September of 2003 we welcomed our first miracle, James. 16 months later we brought home our second miracle, Annie. And in October of 2006 our family was complete with miracle #3, Gracie. Rett syndrome entered our lives when Annie was diagnosed on May 19, 2006. This is the life of the MacDonald family as we juggle 3 small children and battle Rett Syndrome until Gods perfect time when we are cured.

Saturday, January 15, 2011

Rett Pain Update

Thank you, thank you to my loving friends for all of your support, encouragement, prayers but most of all for your understanding.  I LOVE you and want you to know that your girls are in my prayers daily as well.  We have increased Annie's neurontin and are working hard at getting her night time sleep routine under control - we may be headed for more medication changes to accomplish that.  Thankfully we have the most wonderful doctor in the universe that takes impeccable care of our Annie.  If we don't see this frown turn upside down soon we know she will know what to do.
"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future".  Jeremiah 29:11

1 comment:

  1. I've been thinking a lot about Annie since your last post. You both have been in my prayers. It's so good to hear that she has a good doctor. I hope that frown is turned upside down very very soon!!