Scott and Bridget met in 1993 and were married in 2001. In September of 2003 we welcomed our first miracle, James. 16 months later we brought home our second miracle, Annie. And in October of 2006 our family was complete with miracle #3, Gracie. Rett syndrome entered our lives when Annie was diagnosed on May 19, 2006. This is the life of the MacDonald family as we juggle 3 small children and battle Rett Syndrome until Gods perfect time when we are cured.

Tuesday, March 30, 2010

Overwhelming Strength

Annie had her last day on the Lokomat today. She had a 6 minute "walk test" to see how much progress she has made since her first day. She slammed her distance! Her first walk test - 8 weeks ago - Annie was able to walk with assistance a distance of 156 feet in 6 minutes. Today she was able to make it 285 feet! I am so proud of her! Hopefully we will get a chance to this therapy again in the summer time but until then we will keep up the walking at home.
Today I'm feeling so overwhelmed at the strength Annie has.
While most 5 year olds are doing dance or playing little league Annie works tirelessly at gaining the stength to walk. Most 5 year olds are learning how to tie their shoes and snap their fingers, Annie's hands are forever clenched and wringing, just pushing a switch is a struggle. While most 5 year olds are learning to read Annie is trying to use her eyes to communicate the most basic of needs. While most 5 year olds are driving their parents crazy talking up a storm and asking questions, Annie's not able to utter a single word. While most 5 year olds get an occasional stomach ache, Annie is plagued with chronic pain. While most 5 year olds don't have a care in the world Annie is riddled with constant anxiety. While most 5 year olds ask their parents for 5 more minutes of TV or an extra story before bed, Annie cries out in exhaustion because her brain won't allow her to sleep.
I watch her work so hard and some days I can't help but scream "it's not fair, it's not fair, it's not fair!". Not a day goes by that I don't beg for the Lord to allow me to take her place. I have come to the realization that I could never take her place, I'm simply not that strong. Annie was given these struggles because our God knew that she had the strength to live this life. What's more is that despite these struggles Annie is teaching. Annie shows us what's important in life and keeps us from complaining about insignifcant things. She reminds us of all we take for granted and without speaking a single word she is a constant example of love. I am so blessed to be her mommy! Keep up the hard work baby - you're doing great!
"but those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint" Isaiah 40:31

1 comment:

  1. Annie you are amazing...... your strength is undefinable and could only come from the Lord..
    We love you soooooooooo much.......Grammy and Grampy O'Neill