I have some exciting news, I have been asked to be part of a Mothers Advisory Board for Girl Power to Cure. Girl Power to Cure is a 501c3 non-profit organization raising funds for Rett Syndrome Research. I am so thrilled to be part of this wonderful company and consider myself blessed to be among such a wonderfully strong and positive group of mothers.
For those of you who are reading this blog but are not entirely familiar with Rett Syndrome I encourage you to check out Annie's page and read our story. For those of you who are familiar with our family and our precious Annie you can no doubt see what Rett Syndrome has taken from her and us, but what you may not know is the amazing hope we have in research. Researchers have found the gene that causes rett syndrome and have actually reversed rett syndrome symptoms in a mouse model. The science is there, but the funding is not!
A friend of mine, my husband and I are currently training to run the Brooksie Way Half Marathon on October 4th. In leu of this new venture with Girl Power to Cure I am asking everyone to consider sponsoring me in the Brooksie Way by donating $5 to rett syndrome research. My goal is to get just 50 people to donate $5 to get us $250 closer to a cure! To sponsor me please go to Annie's Page and click on the "donate" icon.
If we all come together, raising awareness and funds we can reverse rett syndrome in these girls and never again will another family have to feel the pain of this disease.