Scott and Bridget met in 1993 and were married in 2001. In September of 2003 we welcomed our first miracle, James. 16 months later we brought home our second miracle, Annie. And in October of 2006 our family was complete with miracle #3, Gracie. Rett syndrome entered our lives when Annie was diagnosed on May 19, 2006. This is the life of the MacDonald family as we juggle 3 small children and battle Rett Syndrome until Gods perfect time when we are cured.
Wednesday, February 11, 2009
Yesterday we picked up Annie's new special needs stroller. This was definatly NOT the happiest day of my life. One of the hardest things for me in dealing with rett syndrome is the medical equipment (which is funny because we certainly have enough of it!). I can always get lost in the day to day stuff, somehow just making it a routine and in our busyness I just "forget" that I have a daughter with such high needs. The equipment somehow makes it real, not only to me but to everyone else around. I'm sure in time we'll come to love the stroller, its easier to handle than our other one, lighter weight, more durable, and definatly more supportive for Annie. I also remind myself that this is temperary. One day Annie WILL walk and run and have no need for a stroller or a wheelchair at all. I think Annie knew that I was having a rough time with the new equipment she just stared at me right in the eyes all afternoon and smiled as if to say "It's OK mom, its only for a little while". What an amazing daughter I have. To deal with so much and still be able to comfort her mommy. I am blessed. Here's Annie being fitted for her new stroller. As you can see she is soooo thrilled that it's PINK! James told her that she has a "hot new ride"! That made her smile too.