5 years ago today I got the phone call that changed my life forever. "you're daughter has tested positive for Rett Syndrome". "God NO! Not that one!" months of testing and searching for answers left us with the most devastating neurological disorder that had already stolen much of our 16 month old daughter and the nightmare had only just begun. Our hearts will never be the same. God in His infinite mercy has held us every minute of every day since that phone call, even when we had no business being held. Because of all that is lost I have greater strength, and greater thanks for the blessings that surround me. Annie has pulled me closer to love. One day I will have her back. One day I will hear her voice again. I hold on to that hope and will fight tirelessly until then. I thank God for every day He allows me to care for one of the most perfect angels the world has ever known. I pray for His perfect time. We are 5 years closer to a cure today.