Scott and Bridget met in 1993 and were married in 2001. In September of 2003 we welcomed our first miracle, James. 16 months later we brought home our second miracle, Annie. And in October of 2006 our family was complete with miracle #3, Gracie. Rett syndrome entered our lives when Annie was diagnosed on May 19, 2006. This is the life of the MacDonald family as we juggle 3 small children and battle Rett Syndrome until Gods perfect time when we are cured.

Wednesday, May 18, 2011

Closer to Love

5 years ago today I got the phone call that changed my life forever.  "you're daughter has tested positive for Rett Syndrome".  "God NO!  Not that one!" months of testing and searching for answers left us with the most devastating neurological disorder that had already stolen much of our 16 month old daughter and the nightmare had only just begun.  Our hearts will never be the same.  God in His infinite mercy has held us every minute of every day since that phone call, even when we had no business being held.  Because of all that is lost I have greater strength, and greater thanks for the blessings that surround me.  Annie has pulled me closer to love.  One day I will have her back.  One day I will hear her voice again.  I hold on to that hope and will fight tirelessly until then.  I thank God for every day He allows me to care for one of the most perfect angels the world has ever known.  I pray for His perfect time.  We are 5 years closer to a cure today.  

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6 comments:

  1. EricaMay 18, 2011 at 9:35 PM

    what a beautifully positive post. big hugs to you always!

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  2. ZenaidaMay 19, 2011 at 8:03 AM

    I love you Bridget! We will celebrate together when the time comes :)

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  3. JourneyBeyondSurvivalMay 19, 2011 at 8:55 AM

    You are incredible. I hope you're hugged closer to Love every day.

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  4. DawnMay 19, 2011 at 9:26 AM

    You are such an amazing women, mother and friend and your positive outlook is so inspiring! xoxo

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  5. ColleenMay 19, 2011 at 4:16 PM

    Beautifully said Bridget! I can not wit to celebrate with you, until then , I am honored to have you on this journey with me.

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  6. AnonymousJune 28, 2011 at 5:24 AM

    Hi Bridget!!:) I accidently dropped in here on your blog searching about something on the internet concerning my daughter that has Rett syndrome. You seem like such an amacing mother! I understand everything that you explain about the frustrations, good days, bad days, ups and downs, strength and hope etc. having to "battle" and deal with this diseas every day!! It's like reading my own thoughts and feelings. I live in Norway. Here it's about 3 girls who gets born with it every year, so it's very rear. Anyway, just wanted to comment you here and wish all the best in the future for your beautiful daughter Annie and her siblings :* Hugs from Mekkin Numadottir (ps. you can find me on facebook if you want and we can be "friends" there..)

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