Scott and Bridget met in 1993 and were married in 2001. In September of 2003 we welcomed our first miracle, James. 16 months later we brought home our second miracle, Annie. And in October of 2006 our family was complete with miracle #3, Gracie. Rett syndrome entered our lives when Annie was diagnosed on May 19, 2006. This is the life of the MacDonald family as we juggle 3 small children and battle Rett Syndrome until Gods perfect time when we are cured.

Thursday, February 17, 2011

What we've been up to

Oh how this child amazes me and makes me smile.  Annie's been feeling so great lately.  I am drinking in ever single second of it, I know that it is fleeting and that the time will come that her pain will come back and honestly, I'm thanking God for that because it's knowing the pain that keeps me from taking her happiness for granted.  Soo, this is what our amazing lady has been up to:

Just looking cute

Annie has been doing awesome on her computer lately.  Our rep came by the other day and set her up so she can control the TV, we added music and she can control the MP3 player (we played "freeze dance" the other day, Gracie and I danced when Annie turned on the music and then would freeze when she paused it!), We have hooked her up to wireless internet so she can use her eye gaze as the mouse (haven't tried this, seems a bit challenging but I know Annie will get there) and of course we haven't forgotten education - we set up a page where Annie can start to learn her Dolche Primer sight words through the Unity symbols - I know, take a second to actually think about that - Crazy huh??  Here's a video of Annie turning on the TV with her computer - she's too cute, so proud of herself!

video
Our wonderful friends lent us their stander.  We have never really been interested in getting one because I feel like if Annie can stand independently we shouldn't take that away but when our friends offered us this one we thought that it would be good for extra time on her feet.  I'm so glad we did because Annie has been LOVING it!  The first time I put her in it she was so happy that she didn't have to worry about her stability that she threw her arms around me when I came close and gave me a big hug!!!  Hugs are precious, it takes so much for Annie's hands and arms to work simultaneously to give a hug that on the rare chance you receive one you enjoy ever second of it.  
Here is a video of the girls and I having a huge dance party in the living room during the Super Bowl half time show.  Annie was able to dance all by herself in the stander!
video
That's about all with Lu-Lu.  We are also trying to get her set up with the LOKOMAT therapy program again, I'll keep ya'll posted if we get in again.  

Gracie is just as bouncy and bubbly as ever!  She is diggin' her gymnastics class!
 and has been really loving school and hanging out with her friends!  This girl keeps me on my toes, she's my little mini-me, always making sure that everyone is following the rules in the house and helping me with all the housework.  She started calling me her "Bestie" a couple weeks ago (which I am just LOVING!) and has recently been starting to call Annie her "Bestie" too!  I just can't get over how cute it is.  Gracie loves to play with hair (she's such a girl) yesterday I saw her playing with Annie's hair.  It makes me so happy to see my girls becoming so close.  
James has been keeping busy too.  He did the Awana Grand Prix at our church - his car did great but didn't place.  (It's the red one) But he'll get another chance when he does the Grand Prix with the Cub Scouts.  
James started Cub Scouts this year, he's loving it!  There's been so many great outings and he does it all with his DAD!  Woo Hoo, they get to spend some time together and I don't have to get involved with any of it - it's a two fer!  Here's my handsome guy in his uniform.  
James has also started karate again and is having a GREAT time with it again.  He's an orange belt right now and is hoping to move up to green soon.  
Scott and I haven't been up to much, just trying to keep up with the kiddos and keep things running as smoothly as possible.  It's harder than it seems but I couldn't imagine my life any different.  I love these little ones they are such blessings!

5 comments:

  1. That is so adorable! I am so impressed with the turning on of the computer. ANd the stander, and the gymnast, grand prix, and karate. So so so cool.

    ReplyDelete
  2. I LOVE everything going on in your life!!! :) So glad you are getting a little break, and just getting to experience the joy of everything!!

    Andrea

    ReplyDelete
  3. I just love seeing Annie's big smile. I'm so glad she's doing so well!!

    ReplyDelete
  4. So glad Annie is feeling better! I was thinking about you and your family and wondering how she was (I really hope that's not weird to you, since I don't "know" you)! Your kids are adorable, and I LOVE that first pic of Annie. Yay for good days!!!! :)

    ReplyDelete
  5. Thank you for sharing this. We have three beautiful children, and our youngest was diagnosed with Rett Syndrome earlier this year. Reading your blog has helped us in so many ways. Thank you. God bless you all. Terry.

    ReplyDelete