Scott and Bridget met in 1993 and were married in 2001. In September of 2003 we welcomed our first miracle, James. 16 months later we brought home our second miracle, Annie. And in October of 2006 our family was complete with miracle #3, Gracie. Rett syndrome entered our lives when Annie was diagnosed on May 19, 2006. This is the life of the MacDonald family as we juggle 3 small children and battle Rett Syndrome until Gods perfect time when we are cured.

Saturday, January 29, 2011

The VIEW

I want to make sure everyone got to see the Rett Syndrome segment on The View!
It was such a surreal and exciting experience seeing our friends, the  Gutierrez Family, on stage with the VIEW ladies and knowing that our awesome Girl Power to Cure ladies were there supporting and cheering on our rett family from the audience!  Manny and Stefanie did a fantastic job sharing their story about their beautiful daughter Anna and Rett Syndrome. Monica Coenraads of RSRT was also in the audience and gave the world insight into how close we are to curing this dreaded disease!  I was also thrilled to hear that not only did the View put a link on their page to the RSRT website (so the viewers had a place to go for more information and to place donations) but the ladies of the View watched the documentary, RETT, as part of their research on the segment, and a copy was given to each audience member at The View taping.


That's some pretty amazing exposure for a disease that strikes 1 in every 10,000!  But as Woopie pointed out, and I'm paraphrasing "you say it's 1 in like a trillion but you never know who that 1 will be!"  Which is so true, this can happen to ANYONE!  Rett strikes at random!  You never know who's family it's going to hit next.  Support Rett Research!  Our girls are waiting to break free.  

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