Our very special Dr. Djukic from Montefiore in New York suggested we get a test done on Annie - a 24 hour Holter monitor which is basically a 24 hour EKG of the heart. Girls with Rett Syndrome can sometimes have long QT wave which is when the resting period between heart beats is elongated. We've been followed by a cardiologist since diagnosis, our appointments have gone from every 2 years to every year to every 6 months. We've been skeptical, for sure, but when we have questioned about Annie's heart everyone has always told us that everything is OK! Dr. Djukic suggested that Annie's heart rate may be a little slow, in addition her breath holding due to apraxia was concerning thus the suggestion for the Holter monitor. So of course we jumped right on it and asked our cardiologist for a script. Annie was fitted yesterday.
I absolutly hated seeing all the wires on my tiny Annie and she had had a long day (OT and PT therapy before the monitor fitting) so the two of us were a pair when we left the health center. Instead of heading straight home to grab James and Gracie we decided to take a detour. I had a few things to take back and decided that the only thing that makes a girl feel better is a little shoe shopping!
Annie picked out these two cute pairs. We couldn't decide which were cuter so she got them both. She deserves them! We felt a little better after that. Thankfully Annie didn't seem to be bothered by the Holter so it turned out that this was the easiest test that we have ever had. Results by early next week.
Proverbs 4:23 "Above all else, guard your heart, for it is the wellspring of life."