Scott and Bridget met in 1993 and were married in 2001. In September of 2003 we welcomed our first miracle, James. 16 months later we brought home our second miracle, Annie. And in October of 2006 our family was complete with miracle #3, Gracie. Rett syndrome entered our lives when Annie was diagnosed on May 19, 2006. This is the life of the MacDonald family as we juggle 3 small children and battle Rett Syndrome until Gods perfect time when we are cured.

Friday, July 9, 2010

Back at it

Annie started therapy again this week. We had almost 3 months off due to insurance dragging their feet on approval. This happens from time to time and some times its a nice break but we were sooo excited to get back! OT and PT are both on Wednesday now, which is great because then we only have to make the drive once! Annie is such a motivated little angel. She loves to be up and about and complains if she doesn't get enough "exercise" in her day. She really makes it easy on us, we don't have to force her to work. That said she has her days when she's feeling lazy, like we all do, but you can tell by the pics she's happy to see her friends again.

Amy and Annie working on standing and balance
Amy has been working with us for a few years now. She's amazing. She knows everything! Any time I have a question she has an answer for me. She's very supportive of Annie but more importantly she believes in her and is positive about all the improvements Annie has made!
working on sitting on the floor to standing
Walking! This is Annie's favorite, she loves to walk!
Sit to stand, with a possible reach to knock the tower down
This is the infamous Mr. Andy. He has been Annie's OT since before diagnosis - yes, 4 1/2 years! Andy is amazing. After all this time Andy still ALWAYS has new things to do with Annie but at the same time he never grows tired of teaching her the same thing over and over. Andy is full of compassion and treats Annie like a typical kid, always talking to her and joking with her (which my special needs moms know is awesome! When a kid can't talk people tend to stop talking to them). Here's Andy and Annie finger painting.
and cleaning up!
We are so thankful to be back at Beaumont and so blessed to have our wonderful therapists!

2 comments:

  1. It's amazing what wonderful therapist do for us. :) I don't know what we will do when Abigail ages out of the three and under program.

    After I read your comment I thought I would let you know that I also want to do a list of things people say to parents of kiddos with special needs. I would love if you would colaberate on it. Your comment about when people ask you what's wrong and you want to ask them what's wrong with them...it's EXACTLY what I think. If you are up for helping me with a list you can e-mail me. Our address is on the sidebar of the blog.
    I am loving getting to "know" you and your sweet family through the world of blogs. :)

    Andrea

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  2. I love that Annie just picked right back up with these wonderful people. The desire that she has to work is so sweet, it looks like she is taking beating Rett Syndrome into her own hands ;-) Way to go Annie!

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