Scott and Bridget met in 1993 and were married in 2001. In September of 2003 we welcomed our first miracle, James. 16 months later we brought home our second miracle, Annie. And in October of 2006 our family was complete with miracle #3, Gracie. Rett syndrome entered our lives when Annie was diagnosed on May 19, 2006. This is the life of the MacDonald family as we juggle 3 small children and battle Rett Syndrome until Gods perfect time when we are cured.
Wednesday, February 24, 2010
Every Parent Should See This
Dr. Huda Zoghbi is one of our amazing Rett researchers. She is responsible for finding the gene that causes Rett Syndrome (Mecp2). Dr. Zogbhi is also a member of the RSRT Scientific Board. Last night she discussed "The Developing Brain" on the Charlie Rose Program. I can't stress enough how amazing this discussion was. I encourage every parent (or expectant parent) of a child ages 0 to 7 years (typically functioning or differently abled) to watch this program. Yes, it is 1 hour long but it's so worth it. I have been educated on every one of my kids (all 3, ages 6 and under). This program explains scientifically how our children learn, especially the amazing capacity for learning during these ages, and what, genetically, can go wrong to thwart this progress.