Scott and Bridget met in 1993 and were married in 2001. In September of 2003 we welcomed our first miracle, James. 16 months later we brought home our second miracle, Annie. And in October of 2006 our family was complete with miracle #3, Gracie. Rett syndrome entered our lives when Annie was diagnosed on May 19, 2006. This is the life of the MacDonald family as we juggle 3 small children and battle Rett Syndrome until Gods perfect time when we are cured.

Friday, September 11, 2009

RettGirl.org


Girl Power 2 Cure has just launched a new website resource for Rett Families called RettGirl! at http://www.rettgirl.org/. I hope you check it out and tell everyone about it! You can view and share everything about Rett Syndrome! Products, recipes, doctors, therapies, tips, ideas, videos, resources, fund raisers....it's ALL there! Just click the submit button to add your stuff!!! If you know about ANY kind of fund raiser, let us know so we can get it listed. If you want to sell something, donate to another family, need something... there's a spot for it all. I'm so excited about this site and have already picked up some ideas! Check out the media section and click on websites for great online games using switches!! Just think of how reassuring this site will be for our newly diagnosed families. Oh, and make sure to spread the word! For everyone who signs up for the newsletter, there will be a drawing for some great prizes!!!


No comments:

Post a Comment