Well, it’s Autism Awareness Month! Just incase you missed one of my many mass emails to inform everyone! We have been busy, busy, busy over here raising awareness and organizing fundraisers. If you look to the right of this blog there is information posted about Growing a Garden of Hope. Basically this is for stores and business to offer a flower for a $1 donation to Rett Syndrome. I’m so happy to say that with the help of my wonderful mother and our awesome respite care nanny (Miss Colleen) and a beautiful freighbor (friend/neighbor), Lisa, we have recruited some restaurants to sell our flowers:
Sumo Sushi
Lapumas Coney Island
C J Mahoney’s
Knapp’s Dairy Bar
Please make sure to stop in and eat at one of these restaurants during April and buy a flower to build the gardens!
We are full speed ahead for the walk on May 17. This is going to be a wonderful family friendly event with a bouncy, face painting, tattoos, balloon animals, free food and drinks, and a leisurely 1 mile stroll. The walk is being organized by a local family whose daughter passed away when she was just 20 years old. If you would like to join Annie’s A-Team and walk with us we would be honored! Contact me via email for more information. You can also visit the walk website at http://www.stroll4retts.com/
James’s school has also decided to do a coin drive for rett syndrome during the month of April and Cold Stone has already given us free ice creams for the winning class!! This was James's idea. He is constantly saving his money and finding change so that he can "give it to the researchers for Annie's miracle". I’ll keep you posted on how the kids do!
Lastly, make sure to remember Arbonne for all of your spring weddings and showers. They have wonderful skin care products for women, men and kids (I love the kid’s line, so perfect for my sensitive little ones!). Courtney has graciously offered to give 35% of all sales to help find a cure for rett syndrome. The money will be allocated to buy drugs for the sponsor a drug drug screen at the Rett Syndrome Research Trust. For more information about the drug screen go to http://www.rsrt.org/. To order from Arbonne please call Courtney at 248-659-2989. May I suggest the sea salt scrub to get rid of the winter, dry skin – it’s amazing!!!
There are a couple other things in the works so I will post when we get these things off the ground!
One last thing I want to post that has been weighing heavy on my heart all day. Rett has struck again and has stolen another baby girl. When I heard this my mind immediately raced back to the fear and pain we felt just 3 years ago. Please join with us in praying for this family. Pray for strength, healing, wisdom. Pray that they will reach out to family, friends, and get connected with other rett families. They are no doubt mourning the loss of so many dreams and aspirations for their beautiful little girl. They are terrified of what lies ahead. There are 20 baby girls born with rett syndrome everyday. Their parents will watch in joy as these beautiful little girls grow and develop and hit milestones and then one day it will all be taken away..... with your help in funding research we will get all of our girls back and make sure that no other family has to feel the pain of rett syndrome ever again.Blessings!
I join you everyday in praying for a cure. I hate it everytime another mother contacts me about their daughters diagnosis. It takes me back to our own "day." Thank you for all of your hard work raiing awareness and money for Rett Syndrome research......we WILL have our cure one day!!
ReplyDeleteIt sounds like you have an AMAZING community! Thank you SO much for all of your hard work! I'm hopeful our girls will be able to thank you in person some day :)
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