Back from the VMR

Well, we are back from Annies 23 hour VMR. This is a routine test that we do annually since there is such a high incidence of seizures with rett syndrome but we were also concerned because we have recently seen some "episodes" that look like they may be seizures. Unfortunatly we didn't capture any of these "episodes" at the VMR but fortunatly there have only been a couple of times that we have seen it. We will recieve the results in a couple of weeks. Annie did great! The set up of the electrodes takes a little over an hour. They have to wrap Annie up in blankets to make sure that she stays very still while they glue all the electrodes to her head - we called her a burrito! After that they bring us to a room where they attach the electrodes to control box and then position the camera to Annie and that's it. We sit and relax for 23 hour. It's tough because Annie is essentially confined to the bed but we were able to get her onto her feet at the side of the bed and we kept her engaged with movies, books, toys and of course flash cards because anytime is a good time for learning! Here's a picture of our little trooper! We'll keep posted on the results.