The Harsh Realities...

This is Rett Syndrome.
When you see the slide "Our girls were dragged Kicking and screaming into a world all their own" please remember the years we spent with Annie crying inconsolably for upwards of 48 hours - this was Rett, taking her..... Then look for her after "most have no hand function". Won't you please help? Visit www.reverserett.org

Rett Syndrome

This is a Public Service Announcement for Rett Syndrome. Pause the blog music at the bottom of the page and please take 90 seconds to view and then pass it on! It is imperative that we raise awareness for these beautiful, smart girls. Awareness will raise funds and funds will get us a cure! The science is there, the funding is not! Please join us in our efforts!

Catching Attention

I'm sorry my posting have been sporatic at best lately. We've been so busy throughout the month of October - Rett Syndrome Awareness Month! And of course Toast to a Cure is just a couple days away now. We were thrilled to get 2 articles in the paper to raise awareness you can read them here:
http://www.freep.com/article/20091103/FEATURES01/911030364/-1/rss07


http://www.theoaklandpress.com/articles/2009/10/28/life/doc4ae811ae9bb54411416940.txt

Hope to see lots of people at Toast to a Cure!!

Toast to a Cure!

We're getting close to Toast to a Cure! It's just 1 week away!! This is sure to be a great evening of wine tasting, great appetizers, live jazz music and some great door prizes!! The best part - all money goes towards finding a cure for Rett Syndrome! We're selling tickets in advance to ensure enough food and wine for everyone :) Tickets are $30 each or 2 for $50 so buddy up and email me or go the the website to buy your tickets! We hope to see you there!

Everyday Miracles and CK photography

A few months ago our family was blessed to have a wonderful, talented friend take pictures of us. Christy is a friend of mine from high school. She had heard about Annie's story when we reconnected via facebook. Christy was so gratious to take the trip from Grand Rapids to come out and do a photo shoot in downtown Rochester. Christy posted pictures of Annie along with her story on her blog and what's more is she made a slideshow video of our family. Christy is amazingly talented and has such a gift for photography and capturing the spirit of families. You can click on the CK picture to the right to check out her blog and see what I mean!

Thanks Christy! We Love You!!!

This past Monday we went to a wonderful fundraiser at Lino's in downtown Rochester in honor of a very special angel - Rachel. We met the Morris's about a year ago and it has been so refreshing to get to know them and their family. It's nice to be able to talk to discuss things and lean on someone who really understands your struggles. We love you guys and had a great time catching up on Monday!

Annie just loves to get fancy when she's going out!! Sorry the pictures a bit blurry but you get the idea with her fancy coat and huge smile!

James has been adjusting to Kindergarten and his new school. He's making friends, he's joined the runnning club and just this week he was recognized as a Cool to Care Kid. Cool to Care kids are students who show kindness and good will towards each other. We are so proud of him!!

James stretching at running club

The "Cool to Care" tree

Toast to a Cure

Our website for Toast to a Cure is up and Running! Go check it out! Taost to a cure will be held on Thursday, November 5 from 6:30 - 10pm at Fieldstone Winery in Downtown Rochester. The evening will include live music, wine tasting and an auction all to benefit rett research! Advanced tickets only and space is limited so head to the website and check it out!! Hope to see you there!