tag:blogger.com,1999:blog-8675369465334468208.comments2023-08-03T05:47:27.259-07:00The MacDonald FamilyThe MacDonald Familyhttp://www.blogger.com/profile/12121715561800745719noreply@blogger.comBlogger329125tag:blogger.com,1999:blog-8675369465334468208.post-6682120772867964752015-11-01T09:28:47.925-08:002015-11-01T09:28:47.925-08:00Can you tell me who your expert in Rett Syndrome i...Can you tell me who your expert in Rett Syndrome is? My sister is now 48 and is cared for in a facility. But they keep ripping her out and taking her to the hospital for hypothermia. Rather than being patient and warming her, they are poking and prodding her and exposing her to all sorts of deadly bacteria (MRSA and CDiff) which she will not survive if she contracts them. I'm desperate to find someone who can help me articulate boundaries for her staff.Anonymoushttps://www.blogger.com/profile/17120618192051362732noreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-60982461404952451752013-09-21T06:07:26.400-07:002013-09-21T06:07:26.400-07:00You are such a strong mom. I admire your dedicatio...You are such a strong mom. I admire your dedication and composure amidst your child's condition.Diannehttp://www.rotlaw.com/depuy-pinnacle-hip/noreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-1371787300491926852013-08-20T06:36:14.547-07:002013-08-20T06:36:14.547-07:00Hi! My name is Jessica and I am the Godmother to a...Hi! My name is Jessica and I am the Godmother to a sweet little girl who is being tested for, among other things, Rett's syndrome. I live in Macomb township, and I think based on some map I saw on someone else's site you live near by. If you could please contact me at Zephaniah31617@yahoo.com or on facebook, I'd greatly appreciate it. Thanks!!!!Jessicahttp://www.facebook.com/Zephaniah31617noreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-80770418890826869272013-04-27T07:52:04.295-07:002013-04-27T07:52:04.295-07:00Hi, I have an 18 year old angel that has been havi...Hi, I have an 18 year old angel that has been having unexplained pain for 2 months now. Any suggestions? We've tried everything! Hospitalized, xrays blood etc. It's off to the dentist on Monday. Anything helpspflugerbloghttps://www.blogger.com/profile/17274770634785669212noreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-83732325244679896072013-03-25T11:31:03.342-07:002013-03-25T11:31:03.342-07:00this is one of my favorite songs at this time in o...this is one of my favorite songs at this time in our journey of life as well. praying for you and your family as changes happen. praying for peace, and for more amazing supports to show up!!the family of mannchester estatehttps://www.blogger.com/profile/01989615450493104842noreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-72586244988665853742012-11-13T20:17:00.420-08:002012-11-13T20:17:00.420-08:00Way to go, Annie's A Team!Way to go, Annie's A Team!Ann Mariehttps://www.blogger.com/profile/00363526402404082752noreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-55285635388577070722012-11-09T12:49:57.807-08:002012-11-09T12:49:57.807-08:00Congrats MacDonald family and all of the families ...Congrats MacDonald family and all of the families affected by Rett's syndrome. I am so happy I was able to meet you and Annie. Warm thoughts and prayers your way every day on this journey towards a cure! <br />xoxo - Katie DirksenAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-61390960071726363592012-07-30T21:15:41.662-07:002012-07-30T21:15:41.662-07:00My husband and I just found your blog. We are so e...My husband and I just found your blog. We are so encouraged by your choice to home school your daughter. Our oldest daughter was diagnosed with Rett syndrome a year ago. We are trying to decide what to do for school and your blog is a gift, literally an answer to prayer. Thanks so much for sharing.Jordie Myrickhttp://www.perfectlyblessed.orgnoreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-72458432574240581472012-07-11T16:17:11.803-07:002012-07-11T16:17:11.803-07:00That is WONDERFUL news!!!!! It looks like you all ...That is WONDERFUL news!!!!! It looks like you all are having a great summer. By the way, Zowie LOVES LOVES LOVES Fireworks as well. we call the 4th of July "Zowie's holiday"Brittney Withershttps://www.blogger.com/profile/00186667327594713714noreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-44186208542282156962012-07-11T04:15:25.370-07:002012-07-11T04:15:25.370-07:00Hooray!!!!!Hooray!!!!!Dorishttps://www.blogger.com/profile/17062590306972207702noreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-31966065511321389022012-07-11T01:48:24.603-07:002012-07-11T01:48:24.603-07:00Hurrah - welcome back Annie! Really glad she's...Hurrah - welcome back Annie! Really glad she's enjoying summer so much. So interesting what you say about schedules - very different to my Amy who likes things to happen exactly when she expects them to, and lets us know (loudly) if we're late with her lunch! (One of the reasons why holidays aren't an unmixed blessing for us.) It's lovely to see all these pictures of her smiling :)Catrionahttps://www.blogger.com/profile/10418850635772575322noreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-44870613298964619262012-05-18T04:46:03.373-07:002012-05-18T04:46:03.373-07:00This post breaks my heart. We have been dealing w...This post breaks my heart. We have been dealing with admissions for seizures in the month of April also, so I can relate. We still aren't back to baseline with Bella, and it's heartbreaking for me to watch epilepsy (and whatever undiagnosed condition we are dealing with) steal my little girl's sparkle and smile. I'm sorry you are dealing with these issues also. I hope and pray that Annie is back to her strong, happy self soon. Sending you lots of love and strength. This roller coaster is so very hard on the heart.Juliehttps://www.blogger.com/profile/08685903839595125054noreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-92019354907542622232012-05-17T10:38:14.245-07:002012-05-17T10:38:14.245-07:00You ROCK Bridget and Annie! You are both awesome ...You ROCK Bridget and Annie! You are both awesome with tons of GIRL POWER!Kristyhttps://www.blogger.com/profile/09606933443081429833noreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-25040037521211758352012-04-28T19:41:44.556-07:002012-04-28T19:41:44.556-07:00In spite of all you are going through, your love f...In spite of all you are going through, your love for Annie and for God so clearly gives you the strength to endure and persevere. Praying with you for a cure for this dreadful condition, and for relief soon for precious Annie.Anonymoushttps://www.blogger.com/profile/04577608390110829686noreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-13648928387957717942012-04-23T12:04:31.021-07:002012-04-23T12:04:31.021-07:00So sorry to hear Bridget. It's so funny (not h...So sorry to hear Bridget. It's so funny (not ha ha funny) to read each others post and see so much of our own life. We always say, this journey is truly a roller coaster. The highs are so immensly high that no one can understand how amazing it can be, but the lows are so terribly low that at the time they seem completely unbearable. Sending you lots of prayers and hugs until you reach your next high! I'm sure it's right around the corner and you will soon forget how hard this was.Kristyhttps://www.blogger.com/profile/09606933443081429833noreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-29363571880866407072012-03-30T18:25:18.365-07:002012-03-30T18:25:18.365-07:00<3 brought me to tears. Its beautifully written...<3 brought me to tears. Its beautifully written and your wishes are ours too.Yazmin garcianoreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-62585185210442373762012-03-14T17:36:01.033-07:002012-03-14T17:36:01.033-07:00Me to Bridget......our cure is coming, hang in the...Me to Bridget......our cure is coming, hang in there.Brittney Withershttps://www.blogger.com/profile/00186667327594713714noreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-44728100210289449902012-03-14T07:33:43.023-07:002012-03-14T07:33:43.023-07:00oh bridget! Im wishing right along with you. sen...oh bridget! Im wishing right along with you. sending big big hugs.Ericahttps://www.blogger.com/profile/17851509745425295624noreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-58274280418268276402012-03-10T12:18:11.650-08:002012-03-10T12:18:11.650-08:00This is exactly how I feel. 'Special needs'...This is exactly how I feel. 'Special needs' often doesn't even begin to cover 'Amy's needs'. And I've noticed the same thing, that some children with a lot more function than Amy seem to get a lot more therapy. So far I haven't had the energy to really take that on, but perhaps I should. Thinking of you and Annie, as always xxCatrionahttps://www.blogger.com/profile/10418850635772575322noreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-2118286254453036892012-02-26T21:14:48.532-08:002012-02-26T21:14:48.532-08:00Hi Bridget, you don't know me, but I found you...Hi Bridget, you don't know me, but I found your blog through Reagan's blog several months ago and have kept up since. I have been friends with Reagan's mommy for years and so while Rett Syndrome does not affect my every day life like it does you, Rett Syndrome has touched my life immensely--daily. I think about all of the Rett girls--DAILY! And while most think, "why me?" My question is always, "why not me?" So I read your blog entries (I keep up with several Rett blogs) and I cry and I pray and I wish for all of you (and your girls). While I am take my "typical children's" "typical behavior" for granted here, you are simply longing for the day that your child says "Mommy" again. You and all of your Rett Mommy friends are far stronger and courageous than I will ever be. I applaud all of you for your strength and patience and I will continue to cry, pray and wish until a cure comes and frees these sweet girls! I am so excited to hear you will get to take a great family trip to Disney! How cool is that?!?! With love, Amy FarrellAmyhttps://www.blogger.com/profile/18075327051198137258noreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-42098964901806458282012-02-26T17:10:36.200-08:002012-02-26T17:10:36.200-08:00Bridget I am beyond happy you are going to go with...Bridget I am beyond happy you are going to go with your family to Disney World. Please tell them you to want to stay at the villa Give Kids The World I assure you is going to be one of the most magical experiences of your life:)))))))))) I AM HAPPY HAPPY HAPPY FOR ALL OF YOUZenaidahttps://www.blogger.com/profile/11963991476126957854noreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-31005306898019993022012-02-13T10:39:17.932-08:002012-02-13T10:39:17.932-08:00Bridget, you and your family are a true inspiratio...Bridget, you and your family are a true inspiration of strength, love and courage. Everything you said is so honest, and comes from the heart. We pray for a cure for Annie and continued strenghth for your family. xx Heather C.Heather Cicconoreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-33184713039409427832012-02-13T09:51:14.787-08:002012-02-13T09:51:14.787-08:00I dont know how you got through to post this. I am...I dont know how you got through to post this. I am just beside myself in tears. Love you B!Terri and Abbyhttp://www.abbyczech.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-55039533286632817382012-02-13T09:42:05.762-08:002012-02-13T09:42:05.762-08:00You, my friend are AMAZING! I have no words. I don...You, my friend are AMAZING! I have no words. I don't walk your path, but I will walk along side you praying and lifting you and your family up in prayer.Staceyhttps://www.blogger.com/profile/15135433880707574605noreply@blogger.comtag:blogger.com,1999:blog-8675369465334468208.post-28198476554235122362012-01-06T06:05:02.746-08:002012-01-06T06:05:02.746-08:00happy happy birthday to annie. hope the day is lau...happy happy birthday to annie. hope the day is laughs and giggles for everyone.mjhttps://www.blogger.com/profile/09141031502595666446noreply@blogger.com